We went bowling this week. Well, we went there anyways. Bob refused to bowl with me. So he sat and watched the kids bowl. This always makes me mad when he does this. There isn’t any reason why he can’t get up and throw a ball down the lane.
When we left the bowling alley, I started fussing. I told him that I don’t get upset because he doesn’t write anymore. I know it is difficult for him to write. He has lost the thought process on how to write. I don’t fuss about him not working word searches. I know that is difficult for him to do. I don’t fuss about him not being able to get dressed, or button his shirt. It is hard for him to work buttons. However, I do get upset when he refuses to get up out the wheel chair and move his body. There is nothing wrong with his body, other than the fact that he doesn’t move it. He sits in a chair all day long, and we have to make him get up and get on the exercise bike.
So after I finished my rant of about fifteen minutes on how I am upset because he doesn’t move and how because of that he is getting closer and closer to a home facility because eventually he won’t be able to stand and I won’t be able to lift him…..I paused in my rant and he says to me, “You’re right, I do need to start writing again, but I have to sit to do it.”
Sarah snickered in the back seat, which I promptly, shot her a mommy look. I sat in silence for about two minutes and then said, “You really don’t get it and you will never get it again. It isn’t you who needs to get it, but rather me.” You see, his mind and body no longer work together. Oh, sure he can still walk, stand, eat, all those things, but his mind no longer will tell him to get up and move.
I can fuss all day long to him about getting up and moving, but he will just continue to sit. I have to stop fussing at him, but rather tell him or give him commands of what to do. The days of asking him if he wants to bowl are long gone. His mind will always say no. For now on it will be; stand up, walk to the line, and throw the ball.
So, with that new information we went to Walmart. And we walked the whole store. Bob wheeled himself around in the wheel chair as he followed Sarah and I. He started fussing telling me that he couldn’t get the wheel chair going once he had stopped. Sarah and I had to give him a starter push. That was fine, until we went to the check out counter.
Now, this is funny, the check out counter was empty of people so Bob was back behind Sarah and I. Sarah was unloading the cart. Bob all of a sudden starts the wheel chair moving on his own and heads towards a display unit. I went over to him and asked what he was looking at. He pointed to the CANDY and said, “I was just looking at some of this stuff here.”
“Would you like some candy?” I asked him.
“Can I have some?” he asked.
“If you can pick one out and get it over to the cash register without any help, then yes you may have some candy.” I told him.
He picked up the M&M’s wheeled himself over to the counter and dropped it on the belt. HA!!!! He will wheel for sweets!!!!!
The next day we went to the park and he wheeled himself around the park for chocolate cookies. I would walk ahead of him and stop. Then I would make some comment on how the weather was, how good the cookies were, the flowers were nice, and then say, “Oh, would you like a cookie?” Of course he did and he would wheel himself up to me and get a cookie. Then I would walk ahead of him again, stop, turn, and wait to offer another cookie.
He told me he felt great getting out and exercising.
He heard from some old friends this week. I am sure he shared with some of you his trip to the park. March is going to be a busy week for us with some fun activities coming up. We hope to hear from you all soon.